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10th-Jun-2016 09:22 am
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"Books have endings. Stories don't."
~~Randall "We write to discover what we believe." ~~Jonathan Carroll "...part of you pours out of me in these lines from time to time." ~~"Case of You", Joni Mitchell "There is a crack in everything; that's how the light gets in." ~~"Anthem", Leonard Cohen "If you wanna be immortal, you gotta have something to trade in." ~~"Anything", Foetus "This is the true joy in life, the being used for a purpose recognized by yourself as a mighty one; the being thoroughly worn out before you are thrown on the scrap heap; the being a force of Nature instead of a feverish selfish little clod of ailments and grievances complaining that the world will not devote itself to making you happy." ~~George Bernard Shaw "The real secret of magic is that the world is made of words, and that if you know the words that the world is made of you can make of it whatever you wish." ~~Terence McKenna "When we die, we will turn into songs, and we will hear each other and remember each other." ~~Rob Sheffield "I have a sickness in the brain. I'm allowed to make no sense to you puny mortals with your fully operational head-meat." ~~Spider Jerusalem "Sometimes you crash. Sometimes, the fall kills you. And sometimes... sometimes, you fly." ~~Neil Gaiman "Reputation is what other people know about you. Honor is what you know about yourself." ~~Lois McMaster Bujold "Nobody realizes that some people expend tremendous energy merely to be normal." ~~Albert Camus "Being able to speak the unspeakable is very powerful. If we can hear another person express where they get stuck, or lost, or repeat a negative pattern, it builds a bridge." ~~SARK "Myths and legends die hard in America." ~~Hunter S. Thompson "Don't undertake a project unless it is manifestly important and nearly impossible." ~~Edwin Land "Having faced the fire of your initiation and survived its heat, you can now serve others in a whole new way. By being a living testimony to life transformed, you carry in your cells a sacred knowledge, and in your mind and heart a sacred fire. It's not the fire of youth but the fire of Prometheus, who emerged with the light that would light the world. It's a light that you only could have gotten from having faced some version of your personal hell, and now you are inoculated to the fires which rage around us. Sometimes it is fire that puts out fire, and such is the fire that now burns in you. This is not the fire of your destruction but of your victory. It is the fire of the middle years." ~~Marianne Williamson "Considering how common illness is, how tremendous the spiritual change it brings, how astonishing, when the lights of health go down, the undiscovered countries that are then disclosed…what ancient and obdurate oaks are uprooted in us by the act of sickness…it becomes strange indeed that illness has not taken its place with love and battle and jealously among the prime themes of literature." ~~Virginia Woolf "The Universe puts us in places were we can learn. They are never easy places, but they are right. Wherever we are is the right place, at the right time. The pain that sometimes comes is part of the process of constantly being born." "I will tell you a great secret, Captain, perhaps the greatest secret of all time: The molecules of your body are the same molecules that make up this station, and the nebula outside - that burn inside the stars themselves. We are star-stuff. We are the Universe made manifest, trying to figure itself out. And, as we have both learned, sometimes the Universe requires a change of perspective." ~~Delenn, Babylon 5 "Light Leak", by SJ Tucker
Swirling stars into my skin
With a leaky stolen pen Stories end, pull kenning in Let the light leak in I finally let the light leak in I am kenning all I can She and I, me and my mind, Writing hard for the one true thing That lets you let me in Beguiling what must to gain the trust of the minutemen I am worth investing in and I never stop spinning. Kenning yarns out of my skin With a leaky borrowed pen Swirling stars and stories in Will you let the light leak in? Links
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My sister had some testing done and has it, and I suspect I have it as well, and it's just a matter of convincing my doctor that I'd like to be tested (whatever the test it, I suspect it may be a genetic test of some kind? I think that is what my sister had done).
It's going as well as it can be; the beta blockers I went on in 2005 have been keeping my BP low, which is really the only treatment for the vascular part of it, and I'm in less pain when I keep up on my PT.
EDIT: When I get them for charity events like the BARCC Walk for Change, I get an XXL and they become nightshirts.
Edited at 2016-06-10 03:02 pm (UTC)
I'm glad to hear there's good stuff going on! I miss your updates, your voice, and I miss living close enough to see you even once a year. Keep up with all the good stuff, and hey, are you all done with court proceedings or the like?
Wishing you all the best - no, ALL of it. }:->