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Scheherazade in Blue Jeans
freelance alchemist
Because it's been a while: Ask me anything! (What have I been up to?… 
10th-Jun-2016 09:22 am
Because it's been a while: Ask me anything!

(What have I been up to? Elayna's home from her junior year, having made the Dean's List. I have a lot of medical appointments this month. Also a lot of shows. Working on the nonfiction project, hoping to get time to work on fiction. Still have the best husband and other partners evar. Nicky is doing super great - he's actually kept more sight in that eye than the vet thought he would.)
10th-Jun-2016 01:49 pm (UTC)
I would love to hear more about how you got your doctors to test for hypermobility and how all that's going and any info you have.

My sister had some testing done and has it, and I suspect I have it as well, and it's just a matter of convincing my doctor that I'd like to be tested (whatever the test it, I suspect it may be a genetic test of some kind? I think that is what my sister had done).
10th-Jun-2016 01:54 pm (UTC)
The test for hypermobility is actually super easy. If you mean the test for EDS - the way I got that was by having my whole genome sequenced. I didn't have the obvious signs of classic EDS, because vEDS patients tend not to, so regular clinical testing didn't get us to a diagnosis... but if you have classic EDS, it well might for you!

It's going as well as it can be; the beta blockers I went on in 2005 have been keeping my BP low, which is really the only treatment for the vascular part of it, and I'm in less pain when I keep up on my PT.
10th-Jun-2016 03:00 pm (UTC)
A sanity check is required. Do you wear T-shirts?
10th-Jun-2016 03:01 pm (UTC)
...not usually?

EDIT: When I get them for charity events like the BARCC Walk for Change, I get an XXL and they become nightshirts.

Edited at 2016-06-10 03:02 pm (UTC)
10th-Jun-2016 05:03 pm (UTC)
Hi! I have no question for you at the moment, but I've missed seeing you here on LJ (and in real life, for that matter).
12th-Jun-2016 07:46 pm (UTC)
Seconding the missing your presence on LJ!
10th-Jun-2016 05:43 pm (UTC) - Actually,
I was thinking of you this morning! I was thinking how strange it would be to email you, out of the blue as it were, saying "hey, I haven't seen you on LJ in a long time and I'm thinking about you and wondering about your successes and goings on, and I miss hearing from you, so I guess I can do a bit of info dump on my life and I hope to hear from you."

I'm glad to hear there's good stuff going on! I miss your updates, your voice, and I miss living close enough to see you even once a year. Keep up with all the good stuff, and hey, are you all done with court proceedings or the like?

Wishing you all the best - no, ALL of it. }:->
13th-Jun-2016 01:38 pm (UTC) - Glad you are back!
Did the break from LJ help?
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