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Scheherazade in Blue Jeans
freelance alchemist
Well, another thing. When Adam and I got married, I was sick, and we… 
24th-Oct-2014 09:49 am
Well, another thing.

When Adam and I got married, I was sick, and we thought I'd never get better.

I'd been diagnosed with epilepsy the prior year, and was still on the nightmare drugs that took most of my brain away. I was down to 85 pounds, and glad of the Jewish tradition of one's parents walking one down the aisle, as I honestly didn't know if I could make it by myself (dizziness, balance issues, severe fatigue); I was supposed to walk in a circle seven times around Adam, but the rabbi said three was okay, and I was so glad I managed that. My health was steadily deteriorating.

When Adam signed on for this, he thought that I would be an invalid.

He signed on anyway.

I'm stubborn, but he's always been there to lean on. We divide tasks based on whatever my body is doing in any given year. He understands when I can't do things. And he supports me fighting to do the best that I can.

In 2006, the chronic pain hit, and almost nothing worked at all. I kept switching anti-seizure meds, and each one was worse than the last. And Adam was always by my side.

But in 2009, I got the celiac diagnosis, and most of the pain stopped.

In 2012, I stopped taking brainsmashy drugs.

And this year, I found out that the rest of the pain was due to hypermobility, and we fixed it.

I am doing so much better now. I think of where we thought I'd be in ten years when I walked down that aisle, and - I could never have predicted this.

But I absolutely could have predicted that Adam would be with me no matter what.

As Adam said, we've moved, we've changed jobs - I actually got off my ass and started writing again, and that's working out! - we sent a kid to college... there've been a lot of changes in our world, so many of them good.

It all pales in comparison to the fact that, ten years ago today, I needed to lean on my father's arm just to get down the aisle... and last night, I walked the two miles home from my anniversary dinner with my wonderful husband, talking all the way about what's next for us.
24th-Oct-2014 02:06 pm (UTC)
That is lovely.
24th-Oct-2014 02:15 pm (UTC)
what did you do for the hypermobility? I have that issue...
24th-Oct-2014 02:31 pm (UTC)
Physical therapy! My PT put my pelvis back where it was supposed to be. :) And I had two months of twice-weekly PT where I learned exercises to strengthen muscles around the most hypermobile of my joints, to stabilize me as much as possible; started with little baby exercises and worked up to the tougher stuff. Now I do my PT at home every day, and I actually have pain-free days. Also I had to learn how to sit and stand properly (I was Doing Things to my pelvis, the way I sat, and I was hyperextending my knees when I stood), and I got orthotics, which have improved the way I walk.
24th-Oct-2014 02:40 pm (UTC) - Mazal tov
And many joyous returns of the occasion.
24th-Oct-2014 03:45 pm (UTC)
This is wonderful - you literally brought tears to my eyes. Best wishes to you and Adam, and hugs to both of you.
24th-Oct-2014 05:31 pm (UTC)
<3 and best wishes to you both. :)
24th-Oct-2014 06:17 pm (UTC)
Continued good luck for you and Adam.
25th-Oct-2014 02:45 am (UTC)
GO YOU!!!!

(38 years and counting, here. Colleen's health has declined a lot since then, but we're hanging in there.)
25th-Oct-2014 04:51 am (UTC)
Bravo both of you!
25th-Oct-2014 06:56 am (UTC)
Happy anniversary!
25th-Oct-2014 07:34 am (UTC)
Congratulations to both of you :)! I hope that you will continue to share this loving partnership for many more years. And your story of improved health is an inspiration.

Thank you.
25th-Oct-2014 05:40 pm (UTC) -
Happy anniversary!!
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