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Scheherazade in Blue Jeans
freelance alchemist
Breathe in, breathe out. 
12th-Nov-2013 10:48 am
I went to the doctor yesterday with a List, and emerged with new medications, a referral to a genetic counselor, and a great deal of frustration. The frustration's not at my doctor; it's at my body.

* My heart medication isn't covering me completely; I'm having breakthrough flutters. However, my blood pressure is too low to up my dosage. So for that, at least, we're in wait-and-see mode. If the flutters escalate from annoying to scary, we'll have to switch medications, which we'd rather not do because this one is doing pretty well and I haven't had many side effects from it.

* For the past few weeks, I haven't been able to so much as take a walk without requiring my emergency inhaler. And I wake up wheezy sometimes. So now I'm on Symbicort twice daily as a preventative, and am to check back in a few weeks; if it's not doing the trick, straight-up steroids are the next line of attack. It's really never been quite this hair-trigger. So. Y'know. Concerned.

* I had a resurgence of pain in April and May as Judah was dialing up the emotional abuse and then escalated to physical abuse and rape. It went away from a bit after the immediate aftermath, but it's come roaring back as I wait on some things regarding the criminal and civil cases. For the past few weeks, it's been constant and at a level that absolutely impairs me. So I had to bite the bullet and get pain meds. My doctor would like to give me amitryptiline, but he hears me when I say I don't want anything mood-altering. So I'm on Flexeril for now, and we'll see how that goes.

I am hoping that a lot of this is stress, because this intense stress will go away. I don't know for sure, though. I don't like not knowing.

And so I am frustrated.


Also got my flu shot, then went to Thor 2, which I very much enjoyed.

And today was the first snow of the season, which I videotaped and sent to Elayna. Because... augh, I can't find any video for you! But it's a Gilmore Girls thing. The first snow of the season, and Lorelai and Rory always celebrate, and Elayna and I are Rory and Lorelai. This is the first first-snow-of-the-season without her.

She said "Happy first snow!!!" And she'll do the same when she sees her first snow.

My daughter is a good daughter.
12th-Nov-2013 04:09 pm (UTC)
Thinking of you and hoping that the stress eases (and, by easing, makes the rest better).
12th-Nov-2013 04:39 pm (UTC)
*hugs* I hear you on the body frustrations.

(and how fun with the snow videos!)
12th-Nov-2013 08:36 pm (UTC)
Flexeril was literally magical when I hurt my shoulder, and I didn't have any noticeable side effects, other than feeling a bit sleepy (which could've been many things). I hope it is as helpful for you!

Despite being out and about this morning, I only saw maybe two snowflakes out the window before I left. And it's too cold to enjoy without at least a dusting of snow.
12th-Nov-2013 08:39 pm (UTC) - Something this year...
My asthma has been the worst it's ever been since adulthood.

I've been on the Symbicort since a bout of asthma-induced bronchitis last February. I was able to go down to 1 dose a day during the summer but since the leaves started to fall, I really feel it if I miss that second dose.

I hope everything helps. Hang in there.
14th-Nov-2013 09:54 pm (UTC) - Re: Something this year...
I am both glad and sorry that it's not just me!

12th-Nov-2013 09:04 pm (UTC)

That's enough four-letter-words from you, young lady!
13th-Nov-2013 03:16 am (UTC)
I hear you on the asthma--I've managed to stay off the Advair for much of this year, but I may need to get back on it at some point, as this time of year and the onset of cold weather has always been a trigger for me. Perhaps that's at least some of what's bothering you as well?

As for everything else, well...*hugs* if you'd like or need them, and good thoughts always, OK?
14th-Nov-2013 09:54 pm (UTC)
Oh yeah, the cold air definitely makes things worse! :(
13th-Nov-2013 05:29 am (UTC)
Those first things, I worry for you. *hugs* The last one, I am sniffling.

*more hugs*
13th-Nov-2013 05:38 pm (UTC) - Sorry this is so frustrating
I will say that allergies have been OH MY GOD AWFUL for me this season.
13th-Nov-2013 11:13 pm (UTC)
Dear 'song's body:

We're aware that you're having difficulty with Many Things. But it's making 'song quite uncomfortable and, well, miserable. Be a dear and get with the program, will you? Start working with her and the docs and the meds and all? That's a luv.

All the thanks,

14th-Nov-2013 02:22 am (UTC)
Are you particularly sensitive to tricyclics? The only "mood alteration" 150 mg/day of Nortriptyline causes in me is a lesser inclination to kill myself or other people. It also lessens the physiological impact of the ridiculous amounts of stress I'm sometimes under. This is not the brain drugs of 20 years ago. 50 mg/day would probably do me for the fibromyalgia (I take it at night, with a Klonopin to slow my brain down, so that I can have something akin to normal sleep), but I need an extra 50-100 mg for depression and IED.

I guess I'm putting in a plug for not across-the-board foreclosing on consideration of a tricyclic antidepressant that works for pain, especially pain connected to stress. Flexeril has street value. Tricyclic anti-depressants do not.
14th-Nov-2013 09:53 pm (UTC)
Last I tried it, it was terrible for me; I don't remember the dosage, though.

...street value?
15th-Nov-2013 01:33 am (UTC)
Start low, if you tolerate it well, titrate up. It dries me out terribly, but I needed to be drinking more water anyway. I'm convinced Paxil is somehow linked to the onset of my fibromyalgia. Celexa had bad side effects and a pretty unpleasant withdrawal upon ceasing. Wellbutrin made me a little bit crazy. Trazedone gave me such bad heartburn that I thought I was having a heart attack (but, man, did I sleep well for the first week I was on it!).

When I was first diagnosed with fibromyalgia, one of my friends was an active drug user. Anytime the doctors would want to monkey with my brain drugs or something specific for sleep, I'd run it by him. "Chewing a couple Klonopin with some beers is OK, but it isn't anything terribly special."

Some people's objections to psychotropic drugs is they think they are seriously mood altering (some are) and/or addictive. My gauge of that is whether people are trying to buy the pills off the street to get high. It helps that I'm a criminal defense attorney, so I know what people are getting busted with. I'm mystified that a .5 mg Klonopin will sell for $5. It just doesn't do that much. But the internets say Flexeril runs at about $30/pill. I'm in East Tennessee now, which is #3 in the country for federal prosecutions of pill cases, but that's mostly Oxy, Roxy, Xanax, and morphine.

I'm on six prescription medications. I DO NOT like having to mess with what I have, because you never know what side effects are going to compound other side effects, or negate the positive effects of other drugs. So I hear you on the trepidation about changing meds. It sucks. Needing them sucks. But needing and not having is a suckage unto itself. Hang in there.
15th-Nov-2013 04:14 am (UTC)
Why on earth is Flexeril valuable on the street?!
15th-Nov-2013 01:46 pm (UTC)
People love them some muscle relaxers. I imagine it would be "fun" paired with other drugs, or alcohol. Or people could use it to help them come down from a night of partying with other drugs. And then there are people who start out with legitimate injuries, get addicted to pain pills and because of that get kicked out of whatever pain clinic or doctor's office, who just want some relief from their pain.
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