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Scheherazade in Blue Jeans
freelance alchemist
I have not said this out loud outside the inner circle of People Who… 
10th-May-2013 09:13 am
Everything hurts/Doesn't work
I have not said this out loud outside the inner circle of People Who Take Care of Shira, and Judah didn't even realize the full extent until last night, but since I'm now having to modify my behavior heavily, I should say something:

I have been in considerable pain on a daily basis for several weeks now.

I have been in severe pain on a daily basis all this week.

I'd hoped to put off talking about this for a bit; I have a doctor appointment on Monday and wanted to wait til after. But I went to Elayna's school for her High Honor Roll ceremony this morning, and I found the two-block walk back from the bus stop excruciating.

It's been clear to me for a while that I have Something Else lurking. Because treating the celiac with the gluten-free diet did greatly reduced my pain and fatigue and everything. But if it was only the celiac, I shouldn't still be having pain. I shouldn't have to try to plan rest days after days of activity that would be normal for able-bodied people. If it was just the celiac and I was sticking to a GF diet (which I am; trust me, I'd know if I was glutened, and pain would not be the first symptom!), my body should be acting like that of an able-bodied person.

So there's that. I'm restructuring the next few days to have as much sedentary time as possible (which is still not nearly as much as I need, but I can't stop the world), and I hope that helps. It might, it might not. I'm posting this because I need you to be patient with me. If I can't walk to my bus stop, I can't go to your thing. And if I'm forced to walk somewhere, I will need my cane and extra time.

So there's that.
Comments 
10th-May-2013 01:57 pm (UTC)
I hope it helps, and I hope the cause is resolved quickly and as completely as possible.
10th-May-2013 05:15 pm (UTC)
This.
10th-May-2013 06:14 pm (UTC)
Yes. This. In bunches.
(Deleted comment)
10th-May-2013 02:32 pm (UTC)
Taking Care of Shira is the most important thing you can do right now. I hope you're doing better very very soon.
10th-May-2013 02:33 pm (UTC)
<3
I hope it is fixable, and not too expensive.
Barring that, fixable; we can pass some hats and things.
10th-May-2013 02:36 pm (UTC)
Health insurance is magic!
10th-May-2013 02:42 pm (UTC)
Magic at which I wish I was more adept...
10th-May-2013 06:54 pm (UTC)
So is friendship!

Get well soon, darlin'. <3
10th-May-2013 08:52 pm (UTC)
ILU.
10th-May-2013 02:51 pm (UTC)
Oh no. I'm sorry this is going on, and I hope it's quickly diagnosed and easily treated.
(Deleted comment)
10th-May-2013 03:46 pm (UTC)
*hugs*
10th-May-2013 04:07 pm (UTC)
If the pain is severe enough for you to say it's severe, I think it's fair to say that no one who knows you should take this less than seriously or be less than patient.
10th-May-2013 04:54 pm (UTC)
Absolutely this.
11th-May-2013 05:34 pm (UTC)
From what I know of your pain tolerance, I agree
10th-May-2013 04:23 pm (UTC)
Lots of sympathy and understanding; how frustrating. Best of luck with it, and I'm here if there's anything I can do.
10th-May-2013 05:43 pm (UTC)
Pain sucks. I'm sorry. I hope you get answers soon, and Good Drugs in the meantime.

(I have been on pretty much every pain medication ever, if you need input on efficacy, side effects, etc. With the disclaimer that I seem to tolerate narcotics better than pretty much everyone I've ever met - at the right dosing, they just stop the pain and leave me perfectly clear-headed and functional. Which I gather is not the normal experience.)
10th-May-2013 06:41 pm (UTC)
*big, gentle hugs* I am sorry you are in so much pain. I think I've mentioned before that I have fibromyalgia and sometimes need to use a cane, so I sympathize all too well with the augh and the pain and the needing others' patience.

Would you like me to send some healing/supportive energy your way?
10th-May-2013 06:50 pm (UTC)
:( honeypie, i'm so sorry. let me know if there is any walking/etc I can do on your behalf.
11th-May-2013 03:57 am (UTC)
Ditto on everything.
It is a horrid thing and I share the sorrow (aka, I am so sorry). You must do what you must do for yourself no matter what it takes.

On top of the fibromyalgia, I have spastic ataxic cerebral palsy hemiplegic hypertonic hemiparetic left side, mild, and all the wonderful complexities trotting behind it (even sciatica and lordosis! and of course temporal lobe epilepsy!) ... so I understand fully and totally. My loved ones have endless patience with me; they are like superheroes at this point.
I understand. Yes.

If there is anything I can do, even from Maryland, please let me know. I am still struggling to find the best balance between pharmaceuticals, supplements, holistics, and alternatives. Ongoing adventure. I would be happy to share if you wish, only if you wish. I am now a disability advocate.
10th-May-2013 10:00 pm (UTC)
Thinking about you and sending you good wishes and spoons.
10th-May-2013 10:53 pm (UTC)
Sending good thoughts.
11th-May-2013 02:32 am (UTC)
I hope you;re okay, babe.
(Deleted comment)
11th-May-2013 10:03 pm (UTC)
Take care of you.
13th-May-2013 04:29 am (UTC)
*offers Jedi hugs*
15th-May-2013 12:49 am (UTC)
So sorry I'm way behind. I hope things work out okay and that 'Song gets to be in the less-to-no-pain-zone stat.
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