Magical Truthsaying Bastard Shadesong (shadesong) wrote,
Magical Truthsaying Bastard Shadesong

I have not said this out loud outside the inner circle of People Who Take Care of Shira, and Judah didn't even realize the full extent until last night, but since I'm now having to modify my behavior heavily, I should say something:

I have been in considerable pain on a daily basis for several weeks now.

I have been in severe pain on a daily basis all this week.

I'd hoped to put off talking about this for a bit; I have a doctor appointment on Monday and wanted to wait til after. But I went to Elayna's school for her High Honor Roll ceremony this morning, and I found the two-block walk back from the bus stop excruciating.

It's been clear to me for a while that I have Something Else lurking. Because treating the celiac with the gluten-free diet did greatly reduced my pain and fatigue and everything. But if it was only the celiac, I shouldn't still be having pain. I shouldn't have to try to plan rest days after days of activity that would be normal for able-bodied people. If it was just the celiac and I was sticking to a GF diet (which I am; trust me, I'd know if I was glutened, and pain would not be the first symptom!), my body should be acting like that of an able-bodied person.

So there's that. I'm restructuring the next few days to have as much sedentary time as possible (which is still not nearly as much as I need, but I can't stop the world), and I hope that helps. It might, it might not. I'm posting this because I need you to be patient with me. If I can't walk to my bus stop, I can't go to your thing. And if I'm forced to walk somewhere, I will need my cane and extra time.

So there's that.
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