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Scheherazade in Blue Jeans
freelance alchemist
My mind. Is blown. 
4th-Jan-2011 09:22 pm
I'm blogging this
Okay, so, relevant backstory, because this is what I was discussing on Gchat with feste_sylvain...

I've been having numbness and pain in my left pinky toe for a month and a half, two months. I have not been talking about it because I have this nasty habit of believing really hard at myself that if I don't acknowledge a new symptom it doesn't exist. I know this is bad and wrong. Anyway. I did internet research - yes, I know diagnosing yourself via the internet is bullshit. That's why when I found sural nerve neuropathy, which fits the type and location of the pain and is caused by trauma like ankle sprains, which I had in October, I called my mother, who works for a podiatrist, and asked her to ask him about it and tell me if I really had to go to a damn doctor. Okay. You're caught up now.

Feste: "I forget; can you take anti-inflammatories safely?"

Me: "Only Celebrex, and define "safely"."
Me: "Celebrex does things to one's heart, but -"
Me: "....waaaaaait."

Feste: "?"

Me: "I was going to say "but I'm prone to ulcers so I can't take ibuprofen" but WHAT IF I'M NOT."
Me: "They didn't find H. Pylorii when they did my endoscopy."
Me: "What if the gastric and duodenal damage was from the celiac?"
Me: "And I didn't have an ulcer?"


I had that endoscopy, in 2005, because of my drastic weight loss; they couldn't find a cause, and suspected ulcer. They found, frankly, a great big gastric and duodenal mess. But no H. Pylorii. So it wasn't a classic ulcer, but eventually I "got better". Of course, I "got better" when I started taking Lyrica and had gradual but eventually extreme weight gain, which camouflaged the celiac for years. And that gastric and duodenal damage? Totally consistent with celiac.

Does this make sense to anyone who doesn't know like my whole medical history? I don't know. I'm overexcited by the fact that maybe I can take ibuprofen now. If I never had an ulcer and that was the celiac all along. Which seems likely, given the evidence.

5th-Jan-2011 02:20 am (UTC)
*fingers crossed*
5th-Jan-2011 02:27 am (UTC)
I believe that I saw studies that have shown that ibuprofen + omeprazole has a similar gastric risk to Celebrex when I was writing about the various PPIs (the class omeprazole belongs to). I know you probably don't want to add MORE fun to your polypharmacy, but I thought I'd throw that out there.
5th-Jan-2011 02:31 am (UTC)
Oh, I don't use omeprazole - but good to know just in case of future gastric nastiness!
(Deleted comment)
5th-Jan-2011 03:01 am (UTC)
Makes sense to me too.
Hoping for the best!
5th-Jan-2011 03:20 am (UTC)
I have some funky digestive issues due to Fibro, but don't have Celiac's. I freely admit I eat Motrin like candy. I'm on a pretty standard 2400MG daily dose broken up throughout the day and ALWAYS TAKEN WITH A FULL MEAL NOT A SNACK!

I can't stress that enough. There needs to be enough of a buffer in the gut to protect the lining from the irritating effects of the Ibuprofen. One of the tricks of managing my fibro that I learned was to keep "mundane pain" in check. So achy knee, motrin. Sore back, motrin. Headache, motrin. Etc. I have noticed a significant difference in my quality of life by keeping my mundane pain minimized.

Good luck!
5th-Jan-2011 03:23 am (UTC)
Does it make sense? To me, given what I know (which is decidedly not your whole medical history), yes it does...and I understand your excitement.

I hope it is indeed the case that you can safely take it, and that it will help you.
5th-Jan-2011 03:30 am (UTC)
Well, I know most of your medical history, but it's making sense to me. Talk to your doctor.
5th-Jan-2011 04:13 am (UTC)
Before you set forth towards a long-term ibuprofen regimen, please know that taking ibuprofen chronically for a few years screwed up my kidneys (I caught it when it was still subclinical/reversible, but many people do not.) (I have since replaced it in my daily anti-inflammatory arsenal with turmeric capsules - which can also be hard on the stomach, but are not problematic for the kidneys, to my knowledge.)
5th-Jan-2011 11:48 am (UTC)
Oh, I'm not planning on daily! Just as-needed. Which is good because nothing does it for certain times of the month like ibuprofen...
5th-Jan-2011 05:39 pm (UTC)
Eep! As a long-term 4-or-more-per-day Ibuprofen user, I need to look into that one...
5th-Jan-2011 04:32 am (UTC)
I get numbness and pain in my toes randomly (random periods of time, but when I get it, it stays or weeks on end). I had it *a lot* last year before I moved...and then it cleared up, and then it came back over the past..since the beginning of December. I don't know if it's the glutening I know I've been exposed to, or the change in meds which absolutely has taken a toll and affected my system in all sorts of funky weird ways, or if it's just the blasted weather.

I *also* had numbness in the toes associated with something I've now forgotten the name of, but which a shot of cortisone cleared up - it didn't clear up the other bits, though.
5th-Jan-2011 05:03 am (UTC)
Ibuprofen is about as tough on your stomach as aspirin, so taking it with a meal and/or dairy should keep you safe. As for kidneys, just don't overdo it. You can be monitored, since I gather you have regular blood work.

I guess this is another case of finding zebras instead of horses, huh. Sure would be nice if you could dump the Celebrex. No more hassles about prescriptions, for one thing. Obviously, talking to the doctor would be a Good Thing(TM) but this sounds like it has promise.
5th-Jan-2011 05:05 am (UTC)
OMG that's awesome! *fingers crossed & good thoughts on it*
5th-Jan-2011 05:39 am (UTC)
That is awesome!
5th-Jan-2011 06:39 am (UTC)
This makes a whole lot of sense to me.

Personally, I think you're very very right about it, but, obviously, because of your complex medical history, I will be prudent and recommend talking to your doctor first before you start popping Advil...

BTW - are you able to take Aleve?
5th-Jan-2011 01:29 pm (UTC)
Lee has taken ibuprofen daily for years, but recently she discovered (through my god-mother) an herbal alternative called serapeptase that's been really effective. She did quite a bit of research on it too; if you'd like I'll have her email you about it.
5th-Jan-2011 02:16 pm (UTC)
Oh, I won't be doing it daily! Just as-needed.
5th-Jan-2011 03:22 pm (UTC)
Makes perfect sense to me, but of course I'm not a doctor--I just play one in print and electronic media.
6th-Jan-2011 03:13 am (UTC)
With celiac, damn near anything makes sense. It's just a wierd set of problems and can affect you in so many ways, and you can spend years thinking you have clusters of other problems.
6th-Jan-2011 06:04 am (UTC)
I hope you're right and advil is OK now.

Also, I'm slightly jealous if that's the case. Being allergic to aspirin, advil, naproxin, and tylenol makes finding pain meds sooo much fun.
6th-Jan-2011 06:09 am (UTC)
Celebrex and tramadol too. Stupid body.
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