Magical Truthsaying Bastard Shadesong (shadesong) wrote,
Magical Truthsaying Bastard Shadesong


Neuro very very very much does not want to reduce the Lyrica dosage, even a little. Risk of catastrophic breakthrough seizures, he says. Status epilepticus, he says.

I just feel like I'm trapped by all the drugs I'm on, I say.

Amazing how I regress. Mumble. Acquiesce.

Amazing how I actually keep hoping.

He can't take on all of my care; he doesn't handle pain. He gave me the names of two neuros who do. They're not very T-accessible.

You know what I miss? Being able to have a job. My kingdom for a part-time bookstore job, man. Or something office-managerial.

My kingdom for enough brain and body to manage it. And for my brain to be reliable enough for daily writing. to kid-wrangle. She cannot find her Girl Scout uniform vest, and we are both frustrated.
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