Magical Truthsaying Bastard Shadesong (shadesong) wrote,
Magical Truthsaying Bastard Shadesong

Neurology update

So after docorion cooking for me, me eating mass quantities of food, guess what?

I lost two pounds.


That's not a weight, that's a spring day in Florida.

I was just... reeling for a bit after that. I felt like I'd maybe lost a little, but I'd felt like that before and had been proven wrong. So I told myself I was weight-stable and paranoid. Because I've been weight-stable for a few months.

Nope. Less than a month and a half between weigh-ins. Lost two pounds.


I went into "holy shit I can't believe I weigh 89 pounds" mode as soon as I saw the scale readout, and the guy weighing me looked very concerned and felt the need to say, "You want to weigh more, right?" I reassured him that I did. Wanting to weigh less than this is not my particular brand of crazy. He said I should weigh 105. I could go for that.

My primary care doc wanted me to call her to work through options if I dip below 90 pounds. I'm not doing it yet. Too many doctors. And my neurologist wants me to go back to my opthalmologist for another pressure reading. No. Too many doctors. I'm taking a break. Only doctor I'm seeing is docorion.


Okay. So. Weight-freaking aside.

The neuro presented Zonegran, which I know nothing of, as a possible adjunct to my Trileptal, since I had the breakthrough seizures at 1050mg/day of Trileptal and have unacceptable side effects at 1200mg/day. I must have looked weary and/or crestfallen, because she then looked up the smallest size of Trileptal (150mg) and said okay, let's try 525mg in the morning (I'm currently on 450mg in the morning) and stick with 600 at night.

I am typing all of this because there are like 5 of you out there who are really actively interested. If you don't care, hey, you have a "page down" button.

Sorry. Tired.

So this is good news, really, because I'm not going on a new medication. I'm going to try to ride this out. Altogether, Trileptal is the best thing I've been on in terms of cognitive effects - I get very little brainfog, and the brainfog clears within two hours of taking the pills. So I can write. Well, I can write if I don't get the double vision I got at 600AM/600PM. Heh.

Tired, though. Neuro visits take a lot out of me. I'm glad docorion was able to come with me.

Had some beef stroganoff and some wild mushroom stew over grits for dinner. We always share our food at restaurants. :) And now I get Elayna to do her homework, and then I snuggle docorion and maybe watch Buffy, maybe watch Buckaroo Banzai.
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