September 11th, 2007

Strangely comfortable

Tew's Day

Happy birthday to bunny_sonatas!

Same as yesterday.

Invisible Illness
If you haven't read the comments on that post yet, you should do so. It's enlightening. (Thank you, commenters!) In some cases, I had no idea what y'all were dealing with. But. Y'know. Invisible.

Slightly off-topic: I have thought of getting a t-shirt made that says "This is what an epileptic looks like."

Something Beautiful
Insect kiragami.

Link Soup
* Spider-Man to the rescue!
* Funky Fries and other food that flopped.
* Mr. Men online pinball!

Daily Science
Subglacial lake in Antarctica! In the wake of the lake's discovery, there arose considerable debate regarding the likelihood of finding life there. The environment is remarkably similar to the dark and cold ocean below the surface of Jupiter's ice moon Europa, so the discovery of life in Vostok could have interesting extraterrestrial implications. Due to the cold, the complete absence of sunlight, and the toxic levels of oxygen, many scientists are certain that Lake Vostok is sterile. That, however, would be a scientific first, since never before has a completely lifeless body of water been found on Earth. Extremophile organisms have turned up in the unlikeliest of places, including within volcanic vents on the ocean floor, in the rocks deep in the Earth's crust, and in frozen arctic soil.

Daily Scent-Stuff
Everything from my recent swap/sale is now in the mail. Sale's still on, though.

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Trip to Target, various house-type stuff, Diesel tonight.
  • Current Music
    Rilo Kiley - Silver Lining
Everything hurts/Doesn't work

The Waiting Place

Excerpt from Paula Kamen's All In My Head: an epic quest to cure an unrelenting, totally unreasonable, and only slightly enlightening headache:


One friend responded that in reading the article detailing the miseries of chronic pain, she kept thinking of Dr. Seuss's classic book Oh, The Places You'll Go!, a treatise on the natural cycles of life. In the book, Seuss described an inevitable unpleasant place, "The Waiting Place", where all of us are doomed to spend time when life is just put on hold and you can't do a thing about it.

I agreed with the observation that this is what having chronic pain is like, but then I also thought: To a chronic pain patient, The Waiting Place means more. It does not just represent a temporary stop now and again; it's a way of life. For when all else fails for a pain patient - when neurology becomes destiny, when pills and powders and positive thinking don't work - waiting is all we have left.

We wait sometimes for an hour to feel better, so we can then finish writing a report. We wait three nights to return a phone call to a friend. We wait a week to get the energy to scour a bathroom tub. We wait an entire summer to withdraw from a powerful drug, meanwhile moving through the edginess and tremors and insomnia and blurred vision that it leaves in its wake. We wait an entire year, pill by pill, to see if a class of drugs will work over time, in higher and higher doses...

In this process of trying to live in the moment, we face constant tensions and contradictions, many all at once: the struggle between pushing through the pain or ministering to it; the struggle to be dependent on others or stand on our own; the struggle to continue an expensive and time-consming treatment or move on; the struggle to accept our disability while not overly identifying with it; the struggle to take responsibility for our health, but then not feeling guilty when the pain persists.

And during this time, here is the real challenge: while we wait for pain to release its grip, we try not to put the rest of our lives on hold, and to manage to participate in other parts of life as best we can.
Zoe & Wash - by kylakae

Life with 'song and Adam

We are watching the Shanghai episode of Tony Bourdain's No Reservations.

Me: "You want to go to China now, don't you?"
Adam: "Aw yeah. They have food there."
Me: "See, this is what I don't understand about your insistence on London as our honeymoon destination."
Adam: "What?"
Me: "Why don't you want to go somewhere they have food?"
Adam: "London's become a decent city for food. They have French just don't eat British food."
Me: "But there are so many places where you could have food you can't get anywhere else. Destination food." A thought occurs to me. "...hey! Is your total and irrational aversion to olives the reason you won't let us go to Greece?"
Adam, half-joking: "...yes. Olives and feta."

He calls me a picky eater. He rules out an entire regional cuisine. :P The things I have seen this man put in his mouth... but not feta, never feta! *sidelong glance*

EDIT: Adam: "You're so cute when you do that little glare out of the corner of your eye."

Now we watch Torchwood. There are bees.
  • Current Music
    Rilo Kiley - Dejalo