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Scheherazade in Blue Jeans
freelance alchemist
Monday 
22nd-Nov-2010 11:20 am
Hearth
Administration
Hello to new reader (and Wiscon buddy) kiyasjoy!

State of the 'Song
Am feeling quite restored. Also the week-long headache seems to have faded. '80s dancing is the cure!

The Ketogenic Diet is Not the Cure
So the Times posted this article about the use of the ketogenic diet for epilepsy. Half the world has sent it to me. I appreciate the thought BUT.

This article is wrong with wrong sauce and incredibly irresponsible.

As is mentioned only very briefly in the article, this diet is not a new thing; it has been around for decades. Why has it not caught on as a treatment for intractable epilepsy? It's not because it's restrictive - a gluten-free diet is restrictive, and celiacs do it, because it works.

The ketogenic diet does not work.

For most people.

The ketogenic diet works, more specifically, on only 33% of people who have the specific and uncommon types of epilepsy it works with. Also, only kids. Also, only for two years. So if you have a toddler with Lennox-Gastaut Syndrome, congratulations, you have a 33% chance of getting a small measure of relief. If you have or are anyone else, you will be fucking up your entire body and getting zero improvement in seizure control.

Epilepsy is scary. People grasp at straws, willing to try anything. It pisses me off that this article implies that this diet works for epileptics in general, when it only works for what's basically a statistically insignificant number of epileptics (because that's 33% of people with a rare form of epilepsy, not 33% of all epileptics). My prediction: a bunch of very sick people.

Link Soup
* More TSA stuff: dsmoen points out that the scanners can cause more than just cancer, and tammy212 has an excellent roundup.
* Oh, I like the idea of merit badges.
* Hey, kids! Arisia student art contest!

Daily Science
Medical monitoring tattoos! "The process would involve injecting small beads containing fluorescent particles into the epidermal layer of the skin; the fluorescent glow would become more intense — and even change color — as glucose or sodium levels drop. Clark said that ideally, the levels would be monitored with a handheld electronic device."

Plans
Did writing this morning yay. Work from 1-5, then Peer Supe, then a bit of hanging out with friends.
Comments 
22nd-Nov-2010 04:29 pm (UTC)
Thanks for the love, Shira!! How've you been?

K.
22nd-Nov-2010 08:22 pm (UTC)
Crazybusy but overall really good. :) You?
22nd-Nov-2010 08:25 pm (UTC)
Yes, crazybusy but overall goodness for me, as well!
22nd-Nov-2010 04:49 pm (UTC) - Skip the ketogenics
I feel you on this one.
Everyone and their brother seems determined to send me every link to every article they can find on how to cure MS!
From Bee stings to weird diets.
If this stuff actually worked, don't you think the medical profession would be all over it!?!?!
Every doctor I have ever met would be perfectly happy to have their name all over every paper on the subject if it really worked! There would be clinics set up, charging big bucks to the insurance companies...
We didn't just casually overlook a cure. HONEST!

(Thank you for letting me rant there...)
22nd-Nov-2010 11:53 pm (UTC) - Re: Skip the ketogenics
If this stuff actually worked, don't you think the medical profession would be all over it!?!?!

If you could market it, yes.
22nd-Nov-2010 06:19 pm (UTC)
i did think of you while reading that article, but it didn't seem to apply so much to your situation. thanks for explaining why.
22nd-Nov-2010 11:55 pm (UTC)
See, that's the thing. LOTS of things work for some small subset of people. (Not for epilepsy, specifically, just in general.) So your reaction - Interesting, doesn't seem to apply here, though - really should be the norm.

22nd-Nov-2010 06:39 pm (UTC)
Was my suggestion about how to fix the map useful? You haven't replied to it yet (or to the other responses).
22nd-Nov-2010 06:47 pm (UTC)
(borrowed by daughter)

say hi to Elayna for me
rubbies for the cats
22nd-Nov-2010 08:03 pm (UTC)
Is it weird that I kinda like the door hangers better than the merit badges? The door hanger is "doing now, go 'way" and the merit badge is "DID THIS DID THIS DID THIS," which has always made me uncomfortable for some reason.

(Would not apply if you could get a medical tattoo in the shape of a tiny merit badge, because dude.)
22nd-Nov-2010 08:11 pm (UTC)
'80s dancing is the cure!

Well, of COURSE it is! The 12" extended remix of "Lovesong," if we're being specific!

*blows kiss*
22nd-Nov-2010 10:04 pm (UTC)
hammercock linked me to that article last week and had to deal with me ranting about ketogenic diets being snake oil for most epileptics for a good 20 minutes.
22nd-Nov-2010 11:56 pm (UTC)
I may have to re-read the article. It totally read to me as "weird and and only works for a very small subset of people, if they're lucky". Maybe I just put that filter on automatically now?
23rd-Nov-2010 02:55 am (UTC)
'80s dancing is the cure!

And music is the doctor. Makes you feel like you want to.

:-)
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