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Scheherazade in Blue Jeans
freelance alchemist
A little clarification 
12th-Jan-2010 04:44 pm
Illyana/soulsword
* I couldn't call back and wait on the line for him because I had to go co-run a two-hour BARCC workshop. But I will do so tomorrow after work. (Because he hasn't called back. Of course he hasn't.)

* "Maybe it was a miscommunication" is a valid question; what wasn't clear from my previous posts, because I was too pissed off to go into detail, was that that's not possible. This wasn't a tech misreading the order. The person who performed the procedure is the doctor I saw in the office, the one who tried to discount the possibility of me having celiac because I wasn't visibly in pain when he saw me (when I'd been off gluten for a month) and sometimes had constipation instead of just diarrhea (when there are people with celiac who don't have gastrointestinal symptoms at all). He was the person who did the endoscopy. And I discussed the purpose of the biopsy with the attending nurses/techs. There is no way anyone in that room thought I was there for something else.

And he was an arrogant prick to start with. But I'm willing to put up with that if the arrogant prick is also a good doctor. He's not.

So I'll call back tomorrow and stay on the line til I speak to him directly. Thank you for the links to the med board and all of the advice.

*breathes*

Workshop went fine, and it helped to wrench myself out of the anger and do something constructive. Now I take a nap.
Comments 
(Deleted comment)
12th-Jan-2010 10:00 pm (UTC)
Unless I'm mistaken (and I might be, I don't think I've read all the comments) the "maybe there was a miscomunication" questions seemed to lean towards "maybe the person you spoke to wasn't as clear on what was going on as she might have been. Maybe she miscommunicated with you today. (that's my hope)
12th-Jan-2010 10:06 pm (UTC)
There's been a bit of "maybe the tech misunderstood what the doctor wanted", too.

I damnwell hope she was just having a senior moment, but the test results should have been in my file.
12th-Jan-2010 10:31 pm (UTC)
It's no longer legal (per Federal regulations called HIPAA) for people to discuss test results over the phone unless they are completely and utterly certain that they are speaking to the person who is either the patient or their durable power of attorney for medical affairs. So, she might have noticed something and realized that she should shut up and let the doctor tell you what's what and what needs to be done.

13th-Jan-2010 12:46 am (UTC)
Then she shouldn't have mentioned the h. pylori result either.
13th-Jan-2010 02:40 pm (UTC)
I completely agree. My staff wouldn't have done that.

13th-Jan-2010 12:54 am (UTC)
*nod* that was certainly my thought when I mentioned miscommunication.
12th-Jan-2010 10:07 pm (UTC)
"Hi, yes? The doctor wants me to leave a message? Here's my message: Unless the doctor calls me back within 5 minutes and can provide a medically, logically and legally sound reason why he DIDN'T perform the test I was supposed to have and consented to, and instead performed a test I didn't want and didn't consent to, my next phone call is to the state board of registriation in medicine. And the one after that to the hospital president's office. And the one after that to my health insurance provider. And the one after that is to my lawyer. Thank you and have a nice day."
13th-Jan-2010 06:34 am (UTC)
This!
This guy needs bitch slap as said above. As a former practitioner I cannot stress how much the above call needs to be made.
YIS,
WRI
13th-Jan-2010 08:03 am (UTC)
That. So that.
12th-Jan-2010 10:11 pm (UTC)
I don't care if there was a miscommunication. They should still, at this point, be falling all over themselves to make it right. That was a serious procedure. It's not like just getting some blood work, or having someone look in your ears, for fuck's sake.
12th-Jan-2010 10:56 pm (UTC)
I agree with this completely.
12th-Jan-2010 11:15 pm (UTC)
This.
12th-Jan-2010 11:20 pm (UTC)
Yes.
12th-Jan-2010 11:47 pm (UTC)
You know, Mr. Rhi gained like 70 lbs before he found out about his celiac disease, and people kept telling him that he couldn't have it because people with celiac get skinny and not fat. They were wrong. Of course. Fuck people who suck. : (
13th-Jan-2010 12:21 am (UTC)
"The person who performed the procedure is the doctor I saw in the office, the one who tried to discount the possibility of me having celiac because I wasn't visibly in pain when he saw me"

This really pisses me off.

You would THINK that a doctor, someone who deals with people with long term illnesses regularly, would get that people who deal with long term illnesses learn to function with pain that would make other people curl up and cry.
Pain gets to be "normal" and it takes more for you to react to it.

Idiot. ((hugs)) Very sorry.

13th-Jan-2010 01:44 am (UTC)
Unfortunately I've noticed over the last few years that at least some members of the medical profession has a tendency to ignore whatever a female paitent has to say about even the most basic and easily detected symptoms in favor of a diagnosis that is based entirely on what is observable during the office visit. And on the few occasions I know of when a male paitent visited the same doctor, they were treated like an inteligent participant in the process.
13th-Jan-2010 02:53 am (UTC)
I have been noticing that for a few years, yeah.
13th-Jan-2010 02:17 pm (UTC)
Oh, yea and verily. You got girl parts? You must not be credible. (I've had it happen even when the physician has her own girl parts.)

Grrrrrrrr!
13th-Jan-2010 02:47 am (UTC)
You are completely justified to be enraged. Having said that, it won't help unless you channel it into action. Can you visit his office tomorrow or this week? Walk ins won't get to see the doctor, but you can sure as hell get to see your file. It's a thought. ((hugs)) and hands you the battle axe...
13th-Jan-2010 04:14 am (UTC)
You know, you are giving me much needed strength in taking a hard look at the gastro doc who is scheduled to be invading my insides from both ends at the end of the month. His office policy is to not respect Advance Directives (not that I have one, but this offends me). He has declared he wants to "exonerate my GI system," this despite the fact that SOMETHING is causing my intestines to bleed, and SOMETHING is causing me not to get enough iron. If it's the Prilosec I've been on for 10 years, then we have a problem with a gastro solution to a gastro problem, which pretty much precludes exoneration.

I don't think you'll be the only one calling a gastro's office tomorrow. Best of luck to you, kick ass, and remember to take care of yourself.
13th-Jan-2010 04:33 am (UTC)
So... I've read the whole thing, and all the comments. I have nothing original to say.

I'm just one more person validating the horror of your experience.
13th-Jan-2010 09:15 am (UTC)
Note: my diarhhea alternated with constipation. The diarhhea took over as I got sicker, but for the first three months of the serious illness it was one of the reasons we (mistakenly) thought I was getting better.
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