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Scheherazade in Blue Jeans
freelance alchemist
Ugh. 
21st-Dec-2009 07:20 pm
Katchoo - Terry Moore
Spent most of today in bed, and most of the rest of today in the bathroom. Gluten toxicity like whoa.

And now my parents are giving me a hard time about not having steak or a burger for dinner, and I am having to hold my ground and crankily insist that really I just want my leftover salad, because even that may be too much solid food.

And this post was just interrupted for ten minutes to explain to my mother *again* that I am feeling really sick and why, and to have a conversation loop with my grandmother that consisted of variations on the following:

Her: "Salad? You should eat solid food."
Me: "That is solid food. It crunches, even."
Her: "Something you ate made you sick?"
Me: "... *yes*."
Her: "You don't know what you ate that made you sick?"
Me: "I do. It's the bread."
Her: "You could freeze some and ship it up to you and eat it when you feel better."
Me: "..."

I am limp like dishrag and weak like kitten and really tired of having the same conversation several times a day with half a dozen people. Also I got little sleep and no one would shut up long enough for me to nap.

Iz can be birthfamily time nao? Then home? Then biopsy?

POST-DINNER EDIT:

My grandmother can apparently grasp "gluten makes me sick" and "I have to eat gluten for the biopsy", just not at the same time. So. We are on infinite repeat here.

Also:

My brother-in-law: "We don't have picky eaters where I come from. They just eat what's on their plates."
Me: "And then some of them die young of various gastric cancers."
Comments 
(Deleted comment)
22nd-Dec-2009 01:27 am (UTC)
===Oh, dear....my brother had the wonderful time with having to say "Hi, I am allergic to milk (in his case, a deadly allergy) at a resturant. They assured him something had no dairy. They brought the item out, slathered in butter...and then they said that butter was not dairy...

===Yeah, the "testing" and "all in your head, let me prove it to you by sneaking something into you that you are supposedly allergic to" is REALLY annoying.
(Deleted comment)
22nd-Dec-2009 01:40 am (UTC)
===Indeed....(of course, neither of us can eat regular mayo, due to the soy allergy, thankfully, Safflower is available, and works for me...) I THINK the whole butter not being dairy is from folks thinking margarine is butter, and thus not dairy, but still, it is amazing how divorced folks are from their food.

===His allergy is fun, he had to effectively grow up on calcium pills and gatorade, if memory serves. (thankfully, he and his wife are rather good cooks, and they both are hyper-aware of all the allergens they both have to deal with.)
22nd-Dec-2009 02:53 am (UTC)
I remember having to carefully explain to a teppenyaki chef exactly why my friends order of salmon must be carefully cooked separate from the shrimp without butter due to dietary restrictions (kosher). He had to call over another chef who repeated everything in the chef's native tounge.
Once that was done he was very careful in the prep and earned a nice tip from my friend.
YIS,
WRI
22nd-Dec-2009 12:41 am (UTC)
I'm so glad that you only have to deal with it for a short time longer, and then you can go back to gluten-free and feeling better *hugs*
22nd-Dec-2009 12:51 am (UTC)
Sorry, dear. Can you have Adam help you? When David gets into this loop with his parents, I step up and take over the explanation so he can rest/do what he needs to do. It only works so long, but it might give you a breather.

Edited at 2009-12-22 12:53 am (UTC)
22nd-Dec-2009 01:00 am (UTC)
"You could freeze some and ship it up to you and eat it when you feel better."

That's an interesting level of not grasping the situation. I hope the next week goes by quickly.
22nd-Dec-2009 01:11 am (UTC)
That's an interesting level of not grasping the situation.

Tis. She's also not really grasping "gluten makes me sick" and "I have to eat it for the biopsy so the intestinal damage shows" simultaneously.
22nd-Dec-2009 06:37 am (UTC)
Gah.
Sorry that you have to do that to prove it tos ome people. Me, I'm just never eating it again.

I'd been sick for ... too damn long. Had a crisis back in 05, and that's when mild illness went serious/crippling.

Then (long story short) I tried zero carb after trying everything else and got well. The only real thing that changed was no more gluten.

I've tested the theory by cheating with wretched results, so I'm not going to do the medical testing. Thankfully my family members believe me.
22nd-Dec-2009 01:03 am (UTC)
-headdesks- Fail, on their part. -hugs-
22nd-Dec-2009 01:11 am (UTC)
When do you get to stop the gluten for good?
22nd-Dec-2009 01:13 am (UTC)
December 29.
22nd-Dec-2009 01:24 am (UTC)
Warning: some family members will never get it. :-/
22nd-Dec-2009 01:30 am (UTC) - Sympathy
From Resa, who also wants to curl up and die after getting into accidental gluten.

:(
22nd-Dec-2009 01:34 am (UTC)
Twelve years after diagnosis, my father still pulls the "picky eater" nonsense (he thinks he's being funny), so my sympathies.
22nd-Dec-2009 02:12 am (UTC)
My advice? Stand up and firmly declaim, "Beelzebub!" and then sit down.

Works for me.
22nd-Dec-2009 02:13 am (UTC)
I may just do that tomorrow.
22nd-Dec-2009 06:39 am (UTC)
HEH
Yes. Please do!
24th-Dec-2009 04:12 am (UTC)
And let us know how THAT goes!

I'm … so sorry you're in this situation.

I'm currently dealing with a similar thing with my arm acting up. The folks? Much like yours, I'm afraid.
22nd-Dec-2009 02:15 am (UTC)
Oy. I'm so glad you'll be able to go completely off gluten soon.

As for the family... *sigh* Can you just say "we are not talking about this any more" and refuse to explain again?
22nd-Dec-2009 02:20 am (UTC)
"Picky eaters." FFS. I'm a picky eater. You're doing this for medical reasons.

Next time, tell him to go eat a dick. (Wrapped in a hot dog bun, of course.)
22nd-Dec-2009 02:23 am (UTC)
My brother-in-law: "We don't have picky eaters where I come from. They just eat what's on their plates."
Me: "And then some of them die young of various gastric cancers."


Sigh. The level of don't-get-it is astounding. I am again thankful for the general level of edumacatedness around the greater Boston area.
22nd-Dec-2009 02:25 am (UTC)
Me too!
(Deleted comment)
22nd-Dec-2009 04:28 am (UTC)
My brother-in-law: "We don't have picky eaters where I come from. They just eat what's on their plates."

OMG. That kind of thing sends me into a rage, I tell you, and I'm not even the one with celiac disease in our house.
22nd-Dec-2009 02:10 pm (UTC)
You have my sympathy... I have a bad fish allergy, and for a long time my parents just couldn't grasp that concept. [my dad kinda finally got it when he force-feed me fishfingers and I went into anaphelatic shock, with blisters all over my mouth.]
24th-Dec-2009 04:15 am (UTC)
Ohmygod.

I'm … so sorry that it had to go that extreme for him to get a clue.

That must have been terrifying for you.
25th-Dec-2009 06:01 am (UTC)
Oh dear. If the state had caught him doing that, I'm sure it could have been counted as a case of child abuse.
22nd-Dec-2009 04:00 pm (UTC)
I would happily beat your b-i-l up for you.
22nd-Dec-2009 05:38 pm (UTC)
I've found likening the body to a car gets through to some people who otherwise Don't Get It. You need to eat wheat/gluten so that the car acts up for the mechanic, so to speak.
23rd-Dec-2009 06:35 am (UTC)
reminds me of one doctor trying to trigger my daughter's seizure disorder to prove that she has epilepsy. *head desk*
25th-Dec-2009 06:02 am (UTC)
Did it finally get through brother-in-law's head?
27th-Dec-2009 02:07 am (UTC)
Hi - I don't know if you've seen this yet:

http://thegfcfcookbook.blogspot.com/2009/12/every-celiacs-nightmare.html

Spread the word...
4th-Jan-2010 08:20 pm (UTC)
WTF? How is a food allergy remotely like being a "picky eater"?
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