?

Log in

No account? Create an account
Scheherazade in Blue Jeans
freelance alchemist
Thor's Day 
19th-Nov-2009 10:33 am
Hearth
Administration
Happy birthday to magenta_girl and scouseboy!

Medical
feste_sylvain says I have more energy! Unfortunately, I burned through it pretty quickly and was in bed early.

!!!!!
Hippocampal sclerosis in refractory temporal lobe epilepsy is associated with gluten sensitivity.

WHUT.

Previous studies have associated coeliac disease (CD) and gluten sensitivity (defined as the presence of anti-gliadin antibodies and positive immunogenetics) with cerebellar degeneration and epilepsy with occipital calcifications. Hippocampal sclerosis (HS) in temporal lobe epilepsy (TLE) is a potentially progressive disorder with unknown aetiology; however, autoimmunity has been implicated as one of the possible mechanisms leading to HS.

!!!

I have hippocampal sclerosis, you see. The lesion that's my seizure focus. They never knew how it got there, because I didn't have a head injury or high fevers in infancy.

And it could be because of the celiac.

I tested as having a wheat allergy when I was 14, y'know.

...I need to pick up the lab order and get Elayna in for her bloodwork right quick.

(Thanks for the link, fiddle_dragon!)

Thanksgiving
If you're coming, RSVP! I need to know how big a turkey to get.

Dear Author Friends
jimhines is having a book drive for a domestic violence shelter. Donate!

Link Soup
* Rape culture makes me tired.
* This is hilarious, though, and makes me actually want to see 2012.
* Another shot at Global Frequency?
* I would like a Chumby One.

Daily Science
* Fish on Europa?

Plans
AGH so much. Okay. Target for 'song-safe colander, canisters, pants, assorted other necessities. Library. Post office*. Elayna's doctor. Major housecleaning starts today, as I'll be out of the house for chunks of tomorrow and the house must be clean for the Wyrding Studios party on Saturday and stay clean for Thanksgiving, and we are not doing that thing again where we shove everything into my office and then I can't use it til February. Should also blast through the magazine stack and mark recipes to photocopy from gluten-free cookbooks. Busy day. Which is good, as it will keep me from pacing and flailing over ZOMG job interview, which is thankfully first thing tomorrow morning, so I don't have hours tomorrow to agonize and jitter.

* The packing tape is AWOL, so no post office. Elayna's library books that are due back today are AWOL as well, despite me telling her several times over the last week that they were due back today. She is going to have to deliver them to the library herself when she gets back from school. After she cleans her place at the dining room table.
Comments 
19th-Nov-2009 04:12 pm (UTC)
The Augustus Glooponov Twins are one of the funnier bits in 2012, and my coworkers and old coworkers make shit blow up real pretty, but it's still really sexist and has weird race stuff going on. It's also a good hour too long.
(Deleted comment)
19th-Nov-2009 05:42 pm (UTC)
Wo. A Unified Field Theory of 'song.

That is exactly what this is.

I have been saying for YEARS that there has to be some connection, that it seems to defy probability that my body is failing in so many different ways with no common link.
20th-Nov-2009 10:48 pm (UTC)
Oh dude wow.

Yeah, a lot of people make similar discoveries when they uncover their food sensitivities, and I was crossing my fingers that that'd be the case for you.
19th-Nov-2009 05:43 pm (UTC)
Also, screw that actress's fictional rationale. I have a teenage daughter, I did not have her when I was a teenager, and I'm still "so hot". :P
19th-Nov-2009 04:54 pm (UTC)
My response when I saw the rape article in Good reader is the same I've got now: What the fuck is wrong with people?

Also, with the colander and canisters, see if they have them in matching colors (if affordable); even with keeping them separate from other items, it can't hurt to also color-code things if at all possible.

(And remember that I've got easy photocopy access at work, of course).
19th-Nov-2009 05:40 pm (UTC)
Also, with the colander and canisters, see if they have them in matching colors (if affordable); even with keeping them separate from other items, it can't hurt to also color-code things if at all possible.

I looked with that in mind! No such luck.

And I was keeping that in mind re: photocopies. :)
19th-Nov-2009 10:44 pm (UTC)
May I recommend the thorough application of a broad tipped sharpie?

If you don't mind my asking, why were you still eating wheat if you were diagnosed as allergic at 14? Was it blown off by parental units, or did it only register as a mild intolerance at the time?
19th-Nov-2009 10:51 pm (UTC)
I think it was blown off. Hard to remember. Busy times! I probably wasn't very symptomatic - soy = anaphylaxis, but wheat never did anything drastic.

Sharpie, *totally*.
19th-Nov-2009 04:54 pm (UTC)
Testing = good.

There's no such thing as too big a turkey (unless it won't fit in the oven)!
19th-Nov-2009 05:28 pm (UTC)
As the person in charge of cooking the turkey, let me dispute that. :-)

(That said, the advice given by the folks at Gourmet -- to rotate the bird 180 degrees periodically -- is a godsend.)
19th-Nov-2009 07:17 pm (UTC)
*laugh*

I was more thinking in terms of leftovers... because there should ALWAYS be leftovers!
19th-Nov-2009 09:31 pm (UTC)
They don't specify, so do they mean 180° around the axis through the turkey's neck and ass, or the one that is vertical down the center of your oven?
19th-Nov-2009 10:36 pm (UTC)
Well, regardless of what they meant, there was no way I was flipping a bird (heh) that big, so I just spun the baking dish 180 degrees.
19th-Nov-2009 10:59 pm (UTC)
I can't remember exactly, but I think I've flipped the bird in the past, but I've only cooked at most 15 lbs.
(Deleted comment)
19th-Nov-2009 04:57 pm (UTC)
http://www.c-3.nu/howtoparent/gf/

I commented a couple of days ago to a link to a gluten-free cookbook. Here's a link to a website from copperbadge.livejournal.com again. I'm sure you've already found it, but I thought I'd try to help.

Also - that medical article and its relevance to your life is freaky. I'm very glad you're getting Elayna to a doctor pronto.
(Deleted comment)
19th-Nov-2009 07:45 pm (UTC)
*nods* I do know the difference. :)

I tested positive for anti-gliadin a week and a half ago (which I know you wouldn't know if you were directed to this post alone!); I can't get in to see a gastroenterologist until December, so I've just gone gluten-free in the interim, and will go back on gluten if I need a biopsy. My energy and skin have improved already. Basically, I have all of the happy fun auto-immune stuff - the celiac test was tacked on to the lupus/Sjogrens bloodwork since I have gastrointestinal stuff that was just chalked up to IBS comorbid with fibromyalgia.

I mention the wheat allergy because if what they thought was a wheat allergy was celiac even then, and the theory in that link is accurate, untreated celiac (I went off wheat temporarily, but was back on within the year) may have caused the mesial hippocampal sclerosis that caused my temporal lobe epilepsy. Just establishing a possible trail.

Thanks for all the vitamin info - I hadn't heard that yet!
20th-Nov-2009 10:53 pm (UTC)
and will go back on gluten if I need a biopsy.

Eh. Given that you've already seen changes, and you think this might be causing seizures, that strikes me as hitting yourself in the head to see if you get headaches. In your place, I'd take it for granted, and hire a new doctor if they give you any guff. :P
19th-Nov-2009 08:52 pm (UTC)
"Thanksgiving
If you're coming, RSVP! I need to know how big a turkey to get."


I am a maybe.. I don't eat much, so you shouldn't factor me into turkey decision.. I will go rsvp as maybe on facebook now.
19th-Nov-2009 08:56 pm (UTC)
commenting again to clarify that I intend on coming but may have to back out day-of due to tastebud ickyness (a new, fun side effect!) or energy level :(
20th-Nov-2009 12:37 am (UTC)
'k. :) Hope you feel well, for more reasons than just that!
20th-Nov-2009 07:22 am (UTC)
I may have mentioned I have a friend with CD, and I spoke to him just the other day about your diagnosis and your other health problems. His response was that going gluten-free should help improve your other conditions, especially those based on mineral deficiencies.

I should have mentioned this conversation sooner. Sorry...
This page was loaded Nov 25th 2017, 5:35 am GMT.